This is a followup to my January 1 post. In March, Tom had two seizures at home, and one at the local hospital after the ambulance brought him there. He later went down to the hospital I mentioned in the other post. He stayed only a day, and is now on an anti-seizure medicine. So far, it has worked. And he sleeps better than he has in twenty years.
This has been harder to deal with than the post-concussion because he cannot drive. He has a followup zoom appointment with the neurologist in October and he is hoping he will be able to drive again. Was the concussion caused by a seizure, or did the concussion bring on seizures? Or are they unrelated? There has been no real answer. We just have to accept what is. It is mostly okay. He tires easily, and must rest during the day. He does have some memory lapses but nothing really important. He has stuck to the low saturated fat regime, and though he misses some things, he is mostly okay.
I am really going to try and write more, and read your blogs which I have missed so much.
I went back and read your January 1 post.
ReplyDeleteI am sure the seizures were alarming for both of you, and I am glad you are keeping your equilibrium. It is good that Tom is sleeping better, I know how important that is. I send you much love and hope that you get answers to your questions.
You are so very kind.
DeleteI don't expect there really are answers. And that is really fine.
One of the weird things for Tom is that he can't remember either the concussions or the seizures. We have told him the gory details. haha
Glad to hear he's stabilized and hope the rest of the year is uneventful health wise. Have a good rest of summer.
ReplyDeleteThank you.
DeleteSending my best to you and Tom and your family. I'm glad you're all navigating your new normal, and I hope the October appointment goes the way you want.
ReplyDeleteThank you.
DeleteI don't know how I feel about him driving, even if he is told it is okay.
I was wondering where you went as you had not posted in a while. My daughter-in-law is on anti-seizure meds and it has seemed to help. I our know our body chemistry is all different as are reactions, but I hope the meds work for him. You've been in my thoughts. Sending the best wishes for you and Tom.
ReplyDeleteTina xo
Thank you.
DeleteHow long has she had seizures?
Apparently it was going on for sometime and they have only diagnosed it. A visit to the neurosurgeon and tests revealed an aneurysm and that explained what she would spasm in the neck and be unable to talk and have difficulty eating. It wasn't like the kind of seizure depicted in the movies. I hope things get betteer for Tom, I know you must be worried.
DeleteFor what it's worth, the meds my DIL is on now are helping. At first she was deadly tired and once they adjusted the dosage she inproved and ow has much more energy.
How very scary for her to have it take so long to diagnose. So glad the meds are helping.
DeleteNan, you can drive yourself mad searching for answers to these questions. The trouble is, I always want to know and when I can't, it annoys me. I've had to learn that where Peter's health was concerned things were complicated. I wish you and Tom so much luck and love as you navigate these difficult waters. Try to look after yourself as well as Tom. Sending much love. xxx
ReplyDeleteYou are so right.
DeleteThank you, and I do need to take care of myself. Haven't for almost a year now. Not good.
Nan, I am glad to see an update from you and I'm also hoping that Tom gets some positive feedback when he has his October appointment. I've thought of both of you often and you know that I send my love and prayers. I think that Cath has some good advice above. I do know that it's hard to take care of yourself when you are worrying about your loved one. Please do it though. As to the driving, complicated subject, right? Guess what will be will be. Deep breaths, good books, loved ones near...you can do those. Hugs to you, my dear, dear friend.
ReplyDeleteDear longtime friend, thank you. It is the worrying but also the more complicated life, with less time. I'm not quite myself, and Tom isn't either. Strange. Am reading a book on FDR's last 16 months in office. Excellent.
DeleteI've missed you, Nan, so it's good to hear from you. So sorry, though, that Tom is still struggling to find answers while you both adjust to the new, somewhat more limited, lifestyle. Take care of yourself, and please pass on to Tom that I'm pulling for him and hope he's back behind he wheel soon.
ReplyDeleteThank you for your kindness, Sam. Tom was very pleased with what you said.
DeleteNan, what a lot of stress you and your family have been dealing with! The lack of answers or certainly from the doctors is so worrying - I went through that with my father so I know how upsetting it can be although at the same time, I kept telling my parents that they couldn't just agonize about it all day because that it both exhausting and unproductive (not sure that comforted them!). I am sending good thoughts your way - at least we are approaching September which is usually the best month of the year, in my opinion.
ReplyDelete